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February 16, 2010

Bravegirl muscles are turning to bone defies illness to go to her prom

A teenager will defy the rare illness that has blighted her life to celebrate her school prom today.
Louise Wedderburn, 16, suffers from a condition which is gradually turning all the muscles in her body into bone.It causes sufferers to grow a second skeleton, crushing their internal organs and freezing their body in place.

Louise's left arm is locked at her side and ribbons of bone have formed across her body.The simple act of walking leaves her exhausted. She longs to be able to go out with her friends and act like any other teenager, but her condition makes that nearly impossible. She has mostly been taught at home & was at first reluctant to go to the prom.Louise Wedderburn
"At first I wasn't going to go. But my friends said I had to. Then I thought about it & realised just how important it was. I'm looking fwd to getting all dressed up & having fun. I'm very excited." said Louise
Louise, from Fraserburgh in Aberdeenshire, suffers from fibrodysplasia ossificans progressiva, or FOP. The horrific illness is one of the world's rarest diseases & is thought to affect just 600 ppl around the globe.

Going to school is difficult, & although she has attended Fraserburgh Academy the majority of her schooling has been done at home.
Louise Wedderburn, pictured here aged 12 with her mother Ciona
"Louise would have preferred to have gone to school more. That's where her friends are.But it just wasn't practical. Home schooling was much better for her." said her mother Ciona.
With the end of her fifth year looming Louise had no plans to go to the school prom like everyone else in her class. But after having her arm twisted she is now going to be the guest of honour. She's even splashed out on a designer Dolce & Gabbanna dress & a pair Vivienne Westwood shoes & she'll be going all out to put her illness behind her & turn heads at the event.
Louise said: "I didn't want to miss out. My two older sisters both went to their prom. I didn't want to be any different.I wanted to look good for my photo so I had to get a new outfit. That's one of the most important things."
Despite her illness leaving her in pain Louise manages to stay upbeat and happy.When she finishes her fifth year she is unsure about what she is going to do next.
But her mother said:
"She loves clothes and fashion. And she's brilliant with make-up.She's very talented. Hopefully, she'll be able to do something down that route.

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